After publishing this entry, I had to come back into it for "editing" as I saw the Bible verse of the day on the blog's front page is Psalm 55:22 (very apt in terms of casting our burdens on the Lord). Now back to the text...
As time goes on, you will see random entries focusing perhaps on one of us, an issue, or even just a bit of preaching from the heart.
Trying to address the subject of how I am without entering into a thesis could be challenging. Luckily I've found that where I have developed most in character over the past two months is in 'brevity' and 'assertiveness'. Let's see how I go putting the former into practice!
I have been off work since Maria had her operation on 25-Feb, having only been able to visit the office a handful of times for short periods. The office is ticking along (probably better than when I left it) and for that I'm grateful (thanks Trish and team). I sometimes feel guilty for not getting into the office more often, but I am active from morning until late evening with the full-time job of caring for Maria and the kids. I thought my current job was challenging...if I'd stayed on in Israel and returned to work, I feel this experience is increasing my confidence to face any work challenge without stress (not that my current role is without stress).
Although I've always tried to be an active parent, being the kids' "primary" carer has given me a greater appreciation of the awesome job Maria has done with our beautiful kids.
Psychologically I'm fine. I would however be happy to swap places with Maria in the blink of an eye (for her sake, not mine), or at least take on her physical pain.
The prayer and practical support helps lighten the load. I will sorely miss the people we have come to know and love in this land. I'm hopeful some of these relationships will continue even with such a distance that will separate us. In today's e-communication environment, there is little excuse for not remaining in contact.
Physically, I won't deny that I am exhausted. I haven't slept through a night since Maria fell ill. I think it's catching up as I collapsed on the lounge for a 5min break this afternoon, but ended up napping for well over an hour. This is the first time I've napped since before Maria fell ill. The kids were a real blessing by occupying themselves, albeit Gabi woke me a handful of times to get my permission to do certain things...trying to catch me off-guard!
I also wanted to take this opportunity to thank my employer, who will remain anonymous (I'm conscious of not mixing private and work matters over the Web). I want to thank them for supporting my existing leave arrangements and more importantly the financial support associated with Maria's treatment as foreigners are naturally managed as private patients. Unfortunately the circumstances were such that Maria could not receive the treatment necessary in Australia at that critical time a few weeks ago.
Speaking of exhaustion, I need to get some sleep so I can face another day that "...the Lord has made." As the lyrics continue, "We will rejoice and be glad in it".
30 April 2009
Wed 29-Apr-09 (Israeli Independence Day)
As mentioned in the previous entry, today was a holiday to celebrate Yom HaAtzma'ut (Israeli Independence Day). The kids and I went to a BBQ at "Dr Harvey's" home. We really enjoyed it. It certainly wasn't short of food or company, especially Aussies!
It was quite warm so the kids had a swim.
We even had a doggy bag of meat, salad and very tasty Anzac biscuits to take home for Maria (thanks Harvey & Loretta).
I like how the Israelis are passionate about their country and overtly display this by flying flags (of all sizes) on cars, houses, buildings...you name it! In the lead-up, there are people at many intersections selling flags to attach to your vehicles. While driving to the hospital I took a few "snappies" to give you a very small glimpse of what it's like.
I had someone come later this afternoon to look at my car and agreed on-the-spot to purchase it. We have been so blessed to have both our cars sold with minimal fuss. We hope the new owners of both cars will have as much fun with them as we have.
29 April 2009
Tue 28-Apr-09 (Yom HaZikaron — Israeli Memorial Day).
To mark Yom Hazikaron there was a siren across the country at 10:00am, which followed one at 8:00pm the night before. The kids got off school early, but we were unable to pick them up as Maria had a radiotherapy session (late change by the hospital). Another dear friend stepped in at a time of need and took them at short notice (thanks Galit).
We went out to the hospital, but although we arrived early it was absolutely packed! We were there nearly an hour before Maria was treated. I don’t know if I’m imagining things, but Maria looked better when she emerged from her session. She seemed to have a little more colour in her face. She also has had a slight larger gap in pain medication.
We now have a four-day break from radiotherapy, although the chemo continues. We will still go to the hospital on Thursday to have Maria’s final blood test for this treatment cycle.
This evening the kids and I went to our local park to celebrate Yom HaAtzma'ut (Israeli Independence Day), which is officially tomorrow. The kids enjoyed all the blow-up castles and fireworks.
We went out to the hospital, but although we arrived early it was absolutely packed! We were there nearly an hour before Maria was treated. I don’t know if I’m imagining things, but Maria looked better when she emerged from her session. She seemed to have a little more colour in her face. She also has had a slight larger gap in pain medication.
We now have a four-day break from radiotherapy, although the chemo continues. We will still go to the hospital on Thursday to have Maria’s final blood test for this treatment cycle.
This evening the kids and I went to our local park to celebrate Yom HaAtzma'ut (Israeli Independence Day), which is officially tomorrow. The kids enjoyed all the blow-up castles and fireworks.
We got icecreams before heading home only a couple of hours ago (about 10:30pm) as the kids were exhausted and ready to leave and I had terrible hay-fever. Fortunately the park was a casual 5min stroll, as by the time we arrived home my allergy had developed into mild asthma. A combination of spray, a tablet and Ventolin seems to have taken the edge off it for now.
Tomorrow there are things happening all over the place. The kids and I may go to a BBQ, check out a parade or just hang out at home. It will be sunny and 27-30. It’s hard to think of returning to Canberra as apparently there were snow flurries last weekend in the area where the kids will be going to school (five minutes from home). Far too early for that!!
Mon 27-Apr-09 (change in the air?)
Maria woke feeling quite strange, so she didn’t emerge until about 11am. She said she got some sleep during the night, which is always positive. Interestingly while eating something around midday, Maria realised she hadn’t taken any pain medication since the evening before—unprecedented since falling ill. Is there a change in the air?
We had another evening session of radiotherapy. After dropping Gabi off to ballet and Ben to a dear friend (thanks Jo) we headed to the hospital. Amazingly, there was not another person there. This was the second "first" in one day! That said, it still seemed to take a while before Maria was treated. Another late night for the kids.
We had another evening session of radiotherapy. After dropping Gabi off to ballet and Ben to a dear friend (thanks Jo) we headed to the hospital. Amazingly, there was not another person there. This was the second "first" in one day! That said, it still seemed to take a while before Maria was treated. Another late night for the kids.
27 April 2009
How is Maria?
This is a question I am asked often, whether it be in person, over the phone, by email, letter, etc.
It's really up to Maria to express how she feels physically and emotionally. This entry aims only to touch on the physical aspect of her health.
She is on a number of drugs, each of which can cause side effects. Unfortunately the steroids (dexamethasone) has not discriminated with Maria and she suffers from a number of its adverse effects. Overall, the following are a number of key issues we manage on a daily basis:
Considering she barely sleeps, her moods in general are okay. When I put myself in her shoes, it's hard to imagine if i'd cope as well.
The kids have certainly adjusted to the role change with me taking on the primary carer's responsibility for both Maria and them. Whether Maria and I have adjusted to this...well that's another story for a book I'll put together in my spare time (don't worry, it won't happen because I don't have much of that).
I have always been involved with caring for the kids, but since Maria's illness I have appreciated even more the work that Maria has put in each day to train and develop them while maintaining an effective routine. I certainly have a long way to go on that front, but continue to try.
The kids have been a huge blessing and seem to be maturing that much more each week. They are participating a whole lot more in chores etc. around the house in the last week or so (on most occasions with "happy hearts").
It's really up to Maria to express how she feels physically and emotionally. This entry aims only to touch on the physical aspect of her health.
She is on a number of drugs, each of which can cause side effects. Unfortunately the steroids (dexamethasone) has not discriminated with Maria and she suffers from a number of its adverse effects. Overall, the following are a number of key issues we manage on a daily basis:
- Head pain - continues, but has not increased (that is positive because she is now on half the dose of steroids she was on only two weeks ago).
- As you have read, she rarely sleeps in the evening (steroids) and doesn't at all during the day (half an hour if she's lucky).
- The fatigue is almost at its peak (radiotherapy).
- She has a sore neck and lower back (steroids).
- Her hands shake (steroids).
- She has a bloated stomach (steroids).
- Her body is extremely weak from muscle wastage (steroids).
- She suffers some nausea, but is responding physically to the chemotherapy at present.
- She is still highly sensitive to sound/noise. She is unable to tolerate loud noise or multiple sounds (e.g. voices) simultaneously.
Considering she barely sleeps, her moods in general are okay. When I put myself in her shoes, it's hard to imagine if i'd cope as well.
The kids have certainly adjusted to the role change with me taking on the primary carer's responsibility for both Maria and them. Whether Maria and I have adjusted to this...well that's another story for a book I'll put together in my spare time (don't worry, it won't happen because I don't have much of that).
I have always been involved with caring for the kids, but since Maria's illness I have appreciated even more the work that Maria has put in each day to train and develop them while maintaining an effective routine. I certainly have a long way to go on that front, but continue to try.
The kids have been a huge blessing and seem to be maturing that much more each week. They are participating a whole lot more in chores etc. around the house in the last week or so (on most occasions with "happy hearts").
Sun 26-Apr-09 (kids join us again, sleep - Maria trying something different)
Last night Maria had four hours sleep! Praise God! This is only the fifth time since the operation (8 1/2 weeks ago) that this has happened for her.
As it was a nice warm day, while Maria received physio this morning at home (she and Diana are really developing such a blessed relationship), the kids and I did a lengthy bike ride which led us to the icecream shop on the beach. The return home carrying a few more calories was a little more challenging.
This evening we took the kids again to the hospital while Maria had her therapy. It has become a little drawn out of late with delayed starts for a range of reasons (some not known to us). This gave the kids the chance to play more on the computers. We sat and picnicked again in the Cancer Centre, to the enjoyment/amusement of other patients waiting around.
As mentioned in yesterday's entry, Maria is exhausted to the point where she is finding it far more difficult to function (she is still doing a good job, even looking through things to dispose of before our return to Australia). She decided at 9:30pm to try and sleep. Since the operation she has not (to my memory) gone to bed this early. Her fear is that she'll wake after her regulation 2 hours sleep and then be awake throughout the night. I encouraged her to try it anyway, as you can see the exhaustion written all over her. Here's praying.
As it was a nice warm day, while Maria received physio this morning at home (she and Diana are really developing such a blessed relationship), the kids and I did a lengthy bike ride which led us to the icecream shop on the beach. The return home carrying a few more calories was a little more challenging.
This evening we took the kids again to the hospital while Maria had her therapy. It has become a little drawn out of late with delayed starts for a range of reasons (some not known to us). This gave the kids the chance to play more on the computers. We sat and picnicked again in the Cancer Centre, to the enjoyment/amusement of other patients waiting around.
As mentioned in yesterday's entry, Maria is exhausted to the point where she is finding it far more difficult to function (she is still doing a good job, even looking through things to dispose of before our return to Australia). She decided at 9:30pm to try and sleep. Since the operation she has not (to my memory) gone to bed this early. Her fear is that she'll wake after her regulation 2 hours sleep and then be awake throughout the night. I encouraged her to try it anyway, as you can see the exhaustion written all over her. Here's praying.
Sat 25-Apr-09 (church, lunching with kids, visit/massage)
I headed off to church with the kids, while Maria stayed home to rest. Although she continues to not be able to sleep, the radiotherapy has worn her down and she is what I would call almost beyond exhaustion.
After church the kids and I checked out the market day held by the school we use for our fellowship. I then whisked the kids off to a restaurant where we had burgers and played a pinball machine - Gabi even "popped it" (got a free game)!
Later in the afternoon a dear friend came by to drop off some food, goodies for the kids and to briefly say hello. It was at this time that I had begun massaging Maria. As Maria is more keen having others massage her, Elizabeth got to stay a little longer than expected, chatting and working on Maria's neck, which has been up and down of late.
After church the kids and I checked out the market day held by the school we use for our fellowship. I then whisked the kids off to a restaurant where we had burgers and played a pinball machine - Gabi even "popped it" (got a free game)!
Later in the afternoon a dear friend came by to drop off some food, goodies for the kids and to briefly say hello. It was at this time that I had begun massaging Maria. As Maria is more keen having others massage her, Elizabeth got to stay a little longer than expected, chatting and working on Maria's neck, which has been up and down of late.
Fri 24-Apr-09 (clean the beach, additional therapy session)
I spent the morning with Ben and Gabi—separately—cleaning the beach. This ties into the environmental studies they are undertaking. It was a beautiful day, although the Mediterranean was a little rough.
Thu 23-Apr-09 (twice to hospital – kids join us)
As we had an appointment with the Neuro-oncologist in the morning, the plan was (as usual) to fit Maria's radiotherapy in afterwards to save us a 2nd trip in the evening. It would also be less disruptive for the kids not having to be cared for. We got straight into our meeting. At the end we went down to the radio-room to find out that due to maintenance and the number of people receiving treatment, there were 29 people ahead of Maria. I did some quick maths and worked out this would just about align with our 6:20pm regular session. We decided to return.
We took the kids with us. They were a bit reluctant at first, but when I told Ben that I got the computers runnings and one had a soccer game on it, the pain suddenly dissipated. I prepared a picnic dinner for us to have afterwards and took a few photos of the occasion. Found out that we need to come in tomorrow (Friday) for a session in lieu of another (not clear as we already have the holiday off next week and have a make-up session the following Friday).
We took the kids with us. They were a bit reluctant at first, but when I told Ben that I got the computers runnings and one had a soccer game on it, the pain suddenly dissipated. I prepared a picnic dinner for us to have afterwards and took a few photos of the occasion. Found out that we need to come in tomorrow (Friday) for a session in lieu of another (not clear as we already have the holiday off next week and have a make-up session the following Friday).
22 April 2009
Mug shots
Maria wanted me to take some photos of her so she could see how much more her hair has fallen out of late, but more-so to get a clearer idea as to where the radiation is being targeted.
She allowed me to post these 'mug shots'.
She allowed me to post these 'mug shots'.
Wed 22-Apr-09 (Therapy — 4 weeks gone, 2 to go)
We have commented quite a bit lately how we are going to miss the routine of going to radiotherapy and seeing familiar faces, visiting Aroma Café and the hustle and bustle of life in Israel. I’m going to miss all these things and even more about 'The Promised Land."
In the evening we arrived at the hospital for therapy. As Ben was at tennis lessons, we decided to take Gabi with us. Among 'Dog' (her favourite toy), she brought along her class's bottlenose dolphin 'webkinz' called "Dipper". Gabi was the first to take Dipper home for four days along with a journal to write of their adventures. Well, this was extra special as Gabi knew there wasn't going to be anyone else in her class (we pray) who get to see someone in Radiotherapy. We even took a photo to prove it (which Gabi has printed for the class). I'll wait to speak with Maria before publishing it. In the interim I have added one of Gabi with Dipper in the kids' play area in the Cancer Centre.
it was great having Gabi there as I was able to go into the therapy room and see them lay Maria down, attach her mask and line her up with lasers (like something out of Star Wars) before we had to leave. For Gabi this was her second time seeing this in as many visits. I have been to all visits and have never been allowed into the inner sanctum...until now.
In the evening we arrived at the hospital for therapy. As Ben was at tennis lessons, we decided to take Gabi with us. Among 'Dog' (her favourite toy), she brought along her class's bottlenose dolphin 'webkinz' called "Dipper". Gabi was the first to take Dipper home for four days along with a journal to write of their adventures. Well, this was extra special as Gabi knew there wasn't going to be anyone else in her class (we pray) who get to see someone in Radiotherapy. We even took a photo to prove it (which Gabi has printed for the class). I'll wait to speak with Maria before publishing it. In the interim I have added one of Gabi with Dipper in the kids' play area in the Cancer Centre.
it was great having Gabi there as I was able to go into the therapy room and see them lay Maria down, attach her mask and line her up with lasers (like something out of Star Wars) before we had to leave. For Gabi this was her second time seeing this in as many visits. I have been to all visits and have never been allowed into the inner sanctum...until now.
Tue 21-Apr-09 (Holocaust Memorial day, plenty of time at hospital)
Just before heading off to the hospital for a long day, the sirens sounded across the country at 10:00am as it is Yom Hashoah. Two minutes silence was observed in memory of the Holocaust victims.
We started at the hospital with a blood test (results continue to be good) and had separate meetings with the Radio-oncologist and our Neurosurgeon (Director of Neuro-oncology). We are just so blessed by the professional and caring people who manage Maria’s situation. Isaac took us for lunch in between and gave us a rundown of the hospital as we have come to know it quite well and the size of it is amazing. It employees 7,500 people and is the largest hospital not only in Israel, but also the Middle East and Mediterranean. They have 72 specialised buildings and plenty of more land to continue building. It’s like its own little city. There are patients from all over the world travelling there for different types of treatment. Again, we’re blessed!
Maria had to wait around to be squeezed into radiotherapy. The kids got to watch ‘Bolt’ at their friends’ house and had a ball. When we came home I made a special candlelit dinner for Maria and the kids. They collapsed into bed.
We started at the hospital with a blood test (results continue to be good) and had separate meetings with the Radio-oncologist and our Neurosurgeon (Director of Neuro-oncology). We are just so blessed by the professional and caring people who manage Maria’s situation. Isaac took us for lunch in between and gave us a rundown of the hospital as we have come to know it quite well and the size of it is amazing. It employees 7,500 people and is the largest hospital not only in Israel, but also the Middle East and Mediterranean. They have 72 specialised buildings and plenty of more land to continue building. It’s like its own little city. There are patients from all over the world travelling there for different types of treatment. Again, we’re blessed!
Maria had to wait around to be squeezed into radiotherapy. The kids got to watch ‘Bolt’ at their friends’ house and had a ball. When we came home I made a special candlelit dinner for Maria and the kids. They collapsed into bed.
Mon 20-Apr-09 (Kids back to school, Mama leaves for Australia)
The kids returned to school with Gabi chomping at the bit from an academic perspective, and Ben keen from a social perspective. Our blood test was postponed until tomorrow to tie in with other appointments, which meant we reverted back to an evening session, but enabled me to collect the kids and take Gabi to ballet. One of the mum’s kindly returned her home while we were at the hospital for treatment.
We arrived home just in time for me to drive Mama to the airport. Fortunately with my airport access, I was able to escort her all the way through and had a coffee and talk before she left for the long journey home. It was a great help to have her here for the Spring Break.
We arrived home just in time for me to drive Mama to the airport. Fortunately with my airport access, I was able to escort her all the way through and had a coffee and talk before she left for the long journey home. It was a great help to have her here for the Spring Break.
Sun 19-Apr-09 (Orthodox Easter)
We celebrated with Mama/Yiayia by taking her to Max Brenner for a chocolate overdose. That sorted us adults, not feeling like eating anything for the rest of the day.
From the previous entry until now (just over a week), it's amazing how much of Maria's hair has fallen out. She refuses to wear a wig and actually blends in quite well in Israel with her scarves and headwraps - she certainly could easily pass as a religious Jewish woman.
From the previous entry until now (just over a week), it's amazing how much of Maria's hair has fallen out. She refuses to wear a wig and actually blends in quite well in Israel with her scarves and headwraps - she certainly could easily pass as a religious Jewish woman.
Sun 12-Apr-09 (Easter Sunday, back to radiotherapy)
We spent the morning celebrating the resurrection of Jesus Christ (Yeshua Ha'Mashiach)—including an egg hunt—before I did a drive up north to drop the kids off for a play date with good friends.
Maria and I had a bit of a day ahead, having to meet with the Head of Radiation Oncology Dept to discuss Maria’s progress. It was agreed that we would taper down the steroids again as we stopped during our trip as Maria was rightly concerned that she didn’t want to suffer any adverse effects at that time. We are aiming to nearly halve the dose of steroids over the next two weeks.
Maria was squeezed in for her radiotherapy. After returning home and dinner, I did the late drive up north to get the kids. They had an awesome time and were completely exhausted.
We are really starting to notice Maria’s hair loss in the areas where the radiation is being targeted.
Maria was squeezed in for her radiotherapy. After returning home and dinner, I did the late drive up north to get the kids. They had an awesome time and were completely exhausted.
We are really starting to notice Maria’s hair loss in the areas where the radiation is being targeted.
Thu 9-Apr-09 to Sat 11-Apr-09 (Golan trip)
Maria mustered up the energy to fulfil her (and my) wish to see the Golan, as we had put it off so many times before Maria became ill. It was worth the wait, although Maria did struggle for a little while after returning home as it took a bit out of her. The five of us, which includes ‘Mama’ (‘Yiayia’ to the kids) headed off and travelled to our accommodation for the two nights at a well known Guest Farm called Vered Hagalil. It is situated on a ridge overlooking the Mt of Beatitudes and Sea of Galilee (Kinneret) from the north. The kids enjoyed some horse riding while we were there. As we arrived on Thursday afternoon and departed on Saturday, all of our major travel was on the Friday. Basically, we headed north-east and ran parallel to the Syrian border. Enroute we came across plenty of fields containing landmines (Ben was a little freaked each time I suggested we do a little off-road driving). We also came across a disused/inoperable tank, which the kids happily played on for quite a while. The area was unbelievably green with so many wildflowers out at present. After heading north towards Lebanon, we veered west and visited the spectacular Nimrod Fortress (built in 1228), which is well preserved and sits near Mt Hermon (tallest mountain in Israel where skiing is popular). We were able to coordinate with the manager of the National Park to drive Maria and Mama up to one of the lookouts. The kids and I did the second, more challenging walk, but the views across the valley were well worth it. Then to Banias Falls (Hermon National Park (Banias), which is the largest waterfall in Israel. Apparently it loses 190 metres in altitude over the course of 3.5km, and you can tell by the force of the flow! It is a beautiful area with many walks on offer and an ancient city. Maria and Mama were unable to do the trip down to the Falls, so the kids and I ran off and briefly explored it. We continued west till we came to Kiryat Shmona (close to the border of Lebanon), which has been the target of rocket attacks from Lebanon, both recently and historically. We had seen enough for a day and headed back to the ranch.
09 April 2009
Wed 8-Apr-09 (a day of art)
The day of artistic flare began with me cooking pancakes I prepared yesterday and left in the fridge overnight to bring out the vanilla flavour I'd added. As it is the eve of Pesach (Passover) and knowing that many shops will close earlier than normal, Maria, Gabi and I headed to Ra’anana to the art/craft shops to purchase some supplies for Maria. Gabi decided to take her purse and buy something if she came across anything of interest.
Maria has recently found peace in sketching. As she has had to borrow Ben’s pencils and sketch pad until now, it's nice that she has her own set. Gabi also bought a couple of things—not to be outdone. Afterwards we had lunch, which is always interesting this time of year as many of the items in food stores are covered and cafes serve only unleavened food. This café (Café Joe – one of my favourite coffees) had a Pesach menu. I’ve heard that some restaurants are foregoing the ban, because cleaning and preparing restaurants at this time is a costly process (plus it was not strongly enforced last year).
We dropped into Dr Harvey’s house on the way home to chat. During our stay Ben called, “…just to say hi…”, which was really mature and a lovely gesture. He has been quite affectionate of late.
Later in the afternoon Gabi and I decided that since we were being artistic today, then we should dye some eggs before Easter. As you can see, we did okay for our first real attempt. Gabi did most of the decorating. We intend to blow-dry decorative wrappings on some of the eggs on Sunday morning.
It is great to be able to spend these next few days celebrating such significant events as:
Pesach (‘Passover’)
People of the Jewish and Christians faiths believe this is when the Pharoah of Egypt learned of God's awesome power the hard way, thereby allowing Moses to take the Israelites out of slavery and Egypt, eventually leading them to the promised land of Israel.
Read the book of 'Exodus' for more information.
Easter
Along with Christmas Day, for us this is the most significant day of the year. Coming from the Christian faith, we believe this is the day when Jesus Christ rose from the dead three days from the time of his crucifixion (paid the penalty of sin for us) to allow 'anyone' who accepts the free gift of believing in Him to have eternal life (heavy going for some of you readers, no doubt).
Read the books/gospels of Matthew, Mark, Luke, John for more information.
We would have loved to visit Jerusalem, but we had the opportunity last year and it would have been too much for Maria. Anyway, our upcoming trip is enough for now (probably for all of us).
While in Gabi’s bedroom a short time ago to pack her things for our trip, she woke and watched me for a while (pretending she was asleep). After a couple of minutes she said to me, “Daddy, I really appreciate all the hard work you and Mummy do for me and Ben.” It’s enough to bring tears to your eyes.
Receiving such touching comments by both our children in one day (wish I could bottle it) gave me the energy and inspiration to sit down and churn this out before bed.
Happy Easter and Chag Pesach Sameach (Happy Passover)
Maria has recently found peace in sketching. As she has had to borrow Ben’s pencils and sketch pad until now, it's nice that she has her own set. Gabi also bought a couple of things—not to be outdone. Afterwards we had lunch, which is always interesting this time of year as many of the items in food stores are covered and cafes serve only unleavened food. This café (Café Joe – one of my favourite coffees) had a Pesach menu. I’ve heard that some restaurants are foregoing the ban, because cleaning and preparing restaurants at this time is a costly process (plus it was not strongly enforced last year).
We dropped into Dr Harvey’s house on the way home to chat. During our stay Ben called, “…just to say hi…”, which was really mature and a lovely gesture. He has been quite affectionate of late.
Later in the afternoon Gabi and I decided that since we were being artistic today, then we should dye some eggs before Easter. As you can see, we did okay for our first real attempt. Gabi did most of the decorating. We intend to blow-dry decorative wrappings on some of the eggs on Sunday morning.
It is great to be able to spend these next few days celebrating such significant events as:
Pesach (‘Passover’)
People of the Jewish and Christians faiths believe this is when the Pharoah of Egypt learned of God's awesome power the hard way, thereby allowing Moses to take the Israelites out of slavery and Egypt, eventually leading them to the promised land of Israel.
Read the book of 'Exodus' for more information.
Easter
Along with Christmas Day, for us this is the most significant day of the year. Coming from the Christian faith, we believe this is the day when Jesus Christ rose from the dead three days from the time of his crucifixion (paid the penalty of sin for us) to allow 'anyone' who accepts the free gift of believing in Him to have eternal life (heavy going for some of you readers, no doubt).
Read the books/gospels of Matthew, Mark, Luke, John for more information.
We would have loved to visit Jerusalem, but we had the opportunity last year and it would have been too much for Maria. Anyway, our upcoming trip is enough for now (probably for all of us).
While in Gabi’s bedroom a short time ago to pack her things for our trip, she woke and watched me for a while (pretending she was asleep). After a couple of minutes she said to me, “Daddy, I really appreciate all the hard work you and Mummy do for me and Ben.” It’s enough to bring tears to your eyes.
Receiving such touching comments by both our children in one day (wish I could bottle it) gave me the energy and inspiration to sit down and churn this out before bed.
Happy Easter and Chag Pesach Sameach (Happy Passover)
08 April 2009
Tue 7-Apr-09 (play date for kids, a long afternoon/evening)
At the moment I'm laying in Gabi's bed with a heat pack on my lower back as I've had all sorts of lower back pain over the past 24+ hours. To counter this pain, I'm rotating beds with the kids to keep me out of the sofa bed. I have always prided myself on never having a lower back problem. Maria's physio is currently in the US, so I can't wait for her to get back as she may be busy with sessions for both of us.
The kids went off for a play date (thanks Antoinette), at which they painted ceramics. Gabi's came home and Ben's needs to be glzed and baked inthe oven.
The kids arrived home after we had headed out for medical appointments, including her evening radio session. As it is the eve of the Passover holiday period, they only had one machine operational, which meant a lengthy delay. By the time we got home the kids were in bed, with Gabi fast asleep and Ben not far behind.
Maria now has a 4 day break from radiotherapy, but the chemo continues. She has been suffering more head pain (possibly from the small reduction in steroids), so we'll see in the morning how her night was aswe may need to reassess.
Maria has always wanted to go to the Golan (far northern Israel). We had put that off so many times during our stay, so we decided it's now or never. We booked to stay in the area for two nights later in the week, allowing us to use it as a launching pad for the region. We are looking forward to seeing Nimrod's Castle and Banias Falls. Hopefully Maria will cope practically with this—she is keen but lacking energy.
The kids went off for a play date (thanks Antoinette), at which they painted ceramics. Gabi's came home and Ben's needs to be glzed and baked inthe oven.
The kids arrived home after we had headed out for medical appointments, including her evening radio session. As it is the eve of the Passover holiday period, they only had one machine operational, which meant a lengthy delay. By the time we got home the kids were in bed, with Gabi fast asleep and Ben not far behind.
Maria now has a 4 day break from radiotherapy, but the chemo continues. She has been suffering more head pain (possibly from the small reduction in steroids), so we'll see in the morning how her night was aswe may need to reassess.
Maria has always wanted to go to the Golan (far northern Israel). We had put that off so many times during our stay, so we decided it's now or never. We booked to stay in the area for two nights later in the week, allowing us to use it as a launching pad for the region. We are looking forward to seeing Nimrod's Castle and Banias Falls. Hopefully Maria will cope practically with this—she is keen but lacking energy.
Mon 6-Apr-09 (bad back...old age?)
As the kids were on their sleepover, I went into work for a couple of hours. Picked the kids up and brought them home.
Some thing happened to my back at some stage during the day. Not quite sure what it was that triggered it. Maria’s mum massaged it, which gave it temporary relief. Need to keep an eye on it.
Played through till we had to head out for our evening radiotherapy session, but not before I set out the boundaries and expectations for both the kids and ‘Mama’.
Got in and out quickly from the treatment, which was a nice change.
Some thing happened to my back at some stage during the day. Not quite sure what it was that triggered it. Maria’s mum massaged it, which gave it temporary relief. Need to keep an eye on it.
Played through till we had to head out for our evening radiotherapy session, but not before I set out the boundaries and expectations for both the kids and ‘Mama’.
Got in and out quickly from the treatment, which was a nice change.
Sun 5-Apr-09 (treatment schedule, Maria’s mum arrives, another sleepover)
Maria’s mum (‘Mama’) arrived in the morning. We were all very happy to see her. She came bearing many gifts. This was a special time for mother/daughter.
The kids went out for a play date with friends (thanks Galit), which turned into a sleepover. With all the disruption it was nice to give them this flexibility as we have both been on their case quite a bit in the last few days.
Received our schedule for remainder of the treatment, which is not that favourable as they are mostly @ 6:20pm, which cuts into key time with the kids and hitting peak traffic in our travels to/from the hospital. The benefit is that it’s generally quiet at the hospital so I can park close to the Cancer Centre and there aren’t masses of people around. We are starting to see ‘regulars’ receiving treatment as we also become part of that group. Maria has started developing a rapport with one lady.
Met with head of Radio-oncology. Part of the discussion involved tapering off of the steroids to see whether it would have any impact on her head pain with the aim of helping her sleep. Watch this space...
The kids went out for a play date with friends (thanks Galit), which turned into a sleepover. With all the disruption it was nice to give them this flexibility as we have both been on their case quite a bit in the last few days.
Received our schedule for remainder of the treatment, which is not that favourable as they are mostly @ 6:20pm, which cuts into key time with the kids and hitting peak traffic in our travels to/from the hospital. The benefit is that it’s generally quiet at the hospital so I can park close to the Cancer Centre and there aren’t masses of people around. We are starting to see ‘regulars’ receiving treatment as we also become part of that group. Maria has started developing a rapport with one lady.
Met with head of Radio-oncology. Part of the discussion involved tapering off of the steroids to see whether it would have any impact on her head pain with the aim of helping her sleep. Watch this space...
Sat 4-Apr-09 (Maria’s mum lost in transit, beach time)
Got up to find 300 (not quite) phone messages from Maria’s father to let us know that he mum was delayed in Australia and therefore missed her Bangkok connection. It was a blessing in disguise as she had to stay in Bangkok for 24 hours in a nice hotel (thanks to the airline) and was then put on a direct flight to Tel Aviv (as opposed to travelling to Amman, then waiting 5 hours before taking the 45min flight to Tel Aviv).
No church today. Weather is picking up, so we hung out with the kids and took them down to the beach for lunch.
No church today. Weather is picking up, so we hung out with the kids and took them down to the beach for lunch.
Fri 3-Apr-09 (quiet day)
Morning make-up session, followed by a drive to Café Tapuz, which is on an orange orchid out in “the sticks”. I think it’s the nicest café atmosphere in the country. Had my favourite ‘shakshuka’ breakfast.
Saw something amazing when leaving the cafe. A huge number of large birds (size of storks/pelicans) were flying in formation and crossing each other without colliding. Even the employees were fixated on this sight! The photo does it no justice.
A quiet day around the house. Collected the kids later in the afternoon.
Thu 2-Apr-09 (kids last school day, sleepovers, haircut, blood test)
I dropped the kids off for their last school day before two weeks of holidays, as each would be going to different friend’s houses for sleepovers. This freed us up as we had a pre-Pesach (Passover) radio session on Friday morning.
Maria walked to Kfar Shmaryahu with Eileen and had her hair cut (see photo evidence below) by Daniel.
Maria walked to Kfar Shmaryahu with Eileen and had her hair cut (see photo evidence below) by Daniel.
It pained him to do so, but the result was worth it. It looked much better than it had. I picked them up as Maria couldn’t do the walk home. We hung out at the local café and Maria had what is one of her favourite hot chocolates in Israel.
Maria had a blood test at the hospital around midday and after her radiotherapy we were able to get the blood results, which showed that so far she is responding well to the chemo. No side effects as yet. However, lack of sleep and ongoing head pain continue to be an issue.
We had an early dinner at ‘The Diner’, where they are accustomed to us asking to turn the music down.
Maria had a blood test at the hospital around midday and after her radiotherapy we were able to get the blood results, which showed that so far she is responding well to the chemo. No side effects as yet. However, lack of sleep and ongoing head pain continue to be an issue.We had an early dinner at ‘The Diner’, where they are accustomed to us asking to turn the music down.